Tuesday, December 31, 2013
Wednesday, December 18, 2013
Friday, December 6, 2013
Monday, November 18, 2013
Sunday, November 10, 2013
Wednesday, November 6, 2013
The big yellow bus
Since I started working out of town, my mom and dad have been picking Adam up from school. We decided that now might be a good time to have him start riding the bus in the afternoon. Today was the first day. He did great!
Tuesday, October 1, 2013
Friday, August 23, 2013
Monday, August 19, 2013
Wednesday, August 7, 2013
Thursday, August 1, 2013
Tuesday, July 30, 2013
Adam is participating in a new research study at Vanderbilt University. He will get an updated autism assessment. They are studying sensory triggers. I agreed to this study mostly to get the current evaluation, which could be helpful for school. He had one visit this week, and will have 2 more, which consists of interviews with psychologists, questionnaires, and finally, an MRI. He had a "mock" MRI, so he'll know what to expect. He did very well.
Sunday, July 28, 2013
Tuesday, July 16, 2013
Monday, July 1, 2013
Friday, June 14, 2013
Thursday, June 13, 2013
Wednesday, June 12, 2013
Saturday, June 8, 2013
Sunday, June 2, 2013
Thursday, May 30, 2013
Wednesday, May 29, 2013
Saturday, May 25, 2013
Friday, May 24, 2013
Stalemate
I haven't done too well updating lately, but it's not because there is nothing to say, but there is just so much to say that it's overwhelming. I am at odds with the school system over Adam's placement for next year. They contend that he has behavior issues and should be in BITE (the behavior intervention program), but I say that his issues stem from autism and should be treated as a disability. He screams, yes, and I agree that it is inappropriate in a classroom, but I know there are other options. I wouldn't be as upset about having him in BITE if it were going to be located at the grade level school he should attend for fifth grade, but it will be at a second and third grade school. He is so smart and I can't just let him be left behind like this without doing everything I can do for him.
I have also lost my job this week. I was an assistant in the BITE room and my position has been eliminated. I suppose there will be other openings for assistants in our schools, but I wonder if my fight with the system will hinder my ability to be rehired.
I have also lost my job this week. I was an assistant in the BITE room and my position has been eliminated. I suppose there will be other openings for assistants in our schools, but I wonder if my fight with the system will hinder my ability to be rehired.
Wednesday, May 8, 2013
Field trip
Today was the field trip to see the Nashville Sounds play. Adam doesn't care much for baseball, but I did get some fabulous photos.
Monday, May 6, 2013
Friday, May 3, 2013
Wednesday, May 1, 2013
I am now in a position between parent and school employee and I have to speak up for what I know is best for Adam. There are some changes being made and I'm not happy about any of the options given for his placement for next year. I have a call in to the special ed. director, and I hope I can maintain my composure and still stand firm.
Saturday, April 27, 2013
Tuesday, April 23, 2013
Monday, April 22, 2013
The wine is chilling
Everyone was screaming today, then they screamed at each other for screaming. Oy.
Friday, April 19, 2013
Disappointment and special kids
Our local Special Olympics events were scheduled for today, but due to heavy rain last night, they had to be cancelled. It was disappointing to everyone involved, and very difficult to explain to those children who just didn't understand. It took a little while, but they were soon calmed down and assured there would be some fun to be found in the day. They continued with their regular schedule and had just entered the gym for PE class to burn off some of that pent-up energy when it was announced that there was yet another change in plans as the gym was going to be used for a presentation from Miss Tennessee. Well, giving Miss Tennessee her due, and I'm sure she is lovely and had wonderful things to say, but these kids could not have cared less about seeing her; they just knew they just had something else taken away from them. Thank God for flexible and resilient teachers and assistants who were able to quickly whisk the class outside to run around on the wet, cold playground. No one seemed to mind that the temperature had dropped 30 degrees within 24 hours.
Adam didn't handle the schedule change of the Special Olympics very well, either, even though he had to be talked into participating in the first place. He had gotten used to the idea and he knew that staying at school meant he was going to have to do some work He also was unhappy about the lunch choices at that time. Sack lunches were ready and paid for and packed for the day, so it wouldn't have mattered if they ended up eating it at school or on a field trip. Unless you were Adam and realized that all of his friends in the cafeteria were going to be eating pizza. I told him he could eat his sack lunch and I would purchase a slice of pizza to go with it. That would have been fine, until he was actually IN the lunch room and noticed they also had French fries, and there was no one there who was able to remedy the situation. He ended up bringing his lunch back to the classroom to finish eating and was fine the rest of the day, but what a stressful day I had!
Adam didn't handle the schedule change of the Special Olympics very well, either, even though he had to be talked into participating in the first place. He had gotten used to the idea and he knew that staying at school meant he was going to have to do some work He also was unhappy about the lunch choices at that time. Sack lunches were ready and paid for and packed for the day, so it wouldn't have mattered if they ended up eating it at school or on a field trip. Unless you were Adam and realized that all of his friends in the cafeteria were going to be eating pizza. I told him he could eat his sack lunch and I would purchase a slice of pizza to go with it. That would have been fine, until he was actually IN the lunch room and noticed they also had French fries, and there was no one there who was able to remedy the situation. He ended up bringing his lunch back to the classroom to finish eating and was fine the rest of the day, but what a stressful day I had!
Thursday, April 18, 2013
Wednesday, April 17, 2013
I believe the behavior specialist was correct when she said it was going to get worse before it gets better. This was not a good day. Adam spent the day screaming every time he was asked to do something he didn't want to do, so then the other children in the BITE room were screaming and it went back and forth and on and on until he sat on the floor and wet his pants, just because. It kind of amuses me when one of the kids complains about the other screaming as if they don't hear the blood-curdling sounds coming out of their own mouths. I would be glad to be home, if the screaming wasn't still occurring, since Adam has had a few of his favorite inconveniences taken away. I wonder if Mack will mind if I open a bottle of wine or three that we bought over the weekend.
Tuesday, April 16, 2013
Adam must be getting used to this new arrangement. He has decided he doesn't want to do any work, so he had to bring his social studies work home. Hmmm, he chose not to do it at school with help, so the consequence is to do it at home on his own. Too bad that means he gets no electronics or playtime until it is done.
Tuesday, April 9, 2013
Monday, April 8, 2013
Adam didn't have a very good day today. I have an IEP meeting tomorrow to discuss putting him in BITE. I don't think that's the place for him. He is currently in CDC, but that's not really right for him. There needs to be other options for high-functioning autistic kids. I'm stressed just thinking about it.
Saturday, April 6, 2013
I just watched this week's episode of Grey's Anatomy. I noticed the "Autism Speaks" poster on the wall. Kudos to the producers and writers, and ABC.
Thursday, April 4, 2013
One common trait of autism is obsessions. One of Adam's obsessions is the Titanic. He can tell you just about everything there is to know about it.
My uncle was recently diagnosed with cancer, and my mom and sister just came back from visiting him. He remembered my telling him this about Adam and he sent a book about the Titanic with my mom for Adam. This makes me both happy and sad.
My uncle was recently diagnosed with cancer, and my mom and sister just came back from visiting him. He remembered my telling him this about Adam and he sent a book about the Titanic with my mom for Adam. This makes me both happy and sad.
Wednesday, April 3, 2013
It's time to get serious about the book I promised myself I wouldn't give up on writing, and that means getting it together on this blog, as well.
Today was a pretty quiet day. Only one of the BITE kids came to school, and he left early for a doctor's appointment. Adam's only issue was trying to escape out the door of the CDC room. We had a talk about that.
Today was a pretty quiet day. Only one of the BITE kids came to school, and he left early for a doctor's appointment. Adam's only issue was trying to escape out the door of the CDC room. We had a talk about that.
Tuesday, April 2, 2013
I have been working in the BITE (Behavior Intervention Training Elementary) room at Adam's school since early November. This arrangement obviously has its pros and cons. On one hand, I am now aware of pretty much everything he does. On the other hand, I am now aware of pretty much everything he does. Some days, as with any challenge, are better than others. Today was one of those days that the BITE kids were better than Adam. He is so smart, and as a result, is a master manipulator, but this gives him an advantage over some of the other kids. He is given more choices, should he choose not to abuse the privilege. Because of today's meltdown, we are attempting a new plan... He was given the homework assignment of compiling his own list of rewards... he will be able to choose, within limits, of what he can earn. He can't go shopping or out for coffee, but a few extra minutes of computer time can go a long way.
Sunday, March 24, 2013
Thursday, March 21, 2013
Wednesday, March 20, 2013
Thursday, March 7, 2013
Sunday, February 24, 2013
Thursday, February 7, 2013
Thursday, January 31, 2013
Wednesday, January 16, 2013
Tuesday, January 15, 2013
Saturday, January 12, 2013
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